Life with Miastenia - Heavy Test. Sometimes miasthenics can not even wash it on their own, drink tea, dress. But they also want to live a normal life, create a family, raise children. Really no hope, or still....? The author of this article will tell his story.
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I got out of the Cabinet of the Neuropathologist and tears stood my eyes. What a doctor told me seemed to an episode from the horror movie: «Urgently on the operation!» For some reason, then I presented a picture, as in the movie, where the skull is opened. I did not understand that for a terrible illness fell on my head as a huge scary hammer. In every sense it was a blow of fate...Two years I lived in a strange condition. Eyes almost never opened, the legs were «VATOVA» and drove up, I could not tie the lace and fasten the button. The worst thing was that, waking up in the morning, washing around and breakfast, I felt as if I spent the whole day with a shovel in the garden. Over two years, overcoming itself has become familiar, I did not realize the dramatic of my condition for a long time, the habit of being patient, restrained and uneconomic, whatever happened. But it became more and more difficult to live, I seemed to lag behind. Fatigue physical grew, growing up, how to spruit, there was no place for me. Sometimes I wanted to fall asleep and not wake up.
Miasthenia - chronic, often remitrating nervous - muscular disease, the main manifestation of which is the pathological fatigue transversely - striped muscles. This disease of the neuromuscular compound in which the normal transmission of the neuromuscular pulse is broken or is not allowed by antibodies to acetylcholine receptors.
Miasthenia recognition at the beginning of the disease is always very difficult, so the diagnosis «Miasthenia», As a rule, it is confused. Currently, myasthenia is considered as an autoimmune disease associated with antibodies to acetylcholine receptors, which reduce the number of effective receptors and violates the transmission of the neuromuscular impulse.
I have a big «experience» In this disease, and I understood the main thing: while a person, a sick Miashenia is looking for help on the side, waiting for someone to give him a miracle - a pill, he will be sick. Medicine is now expensive, pass the tests and get to the reception to a specialist - very expensive. Not many people who understand what Miasthenia is. My familiar girl doctor is a neuropathologist who examined her, said: «To treat myasthenia, it is necessary to hurt her». Because every Miashenia Music is a new story, these are individual causes of the disease. Every previous case does not look like the next. But as we understand each other!!!
On my observations there are still moments that unite us. Our body is composed «chains». This is figurative. Everyone has their own «Chains» and their reasons that these chains create. Obviously one. Reluctance or inability to realize their true needs leads to the fact that the body ceases to obey.
The most common reason for which contact between head and body is disturbed: hidden aggression. For different reasons, we often do not want or do not know how to confess that you are angry with people close to us. We are accustomed to believe that it is impossible to experience anger, well, for example, on her husband. A woman turned to me who could not speak, or rather spoke, but with difficulty. Her muscles participating in the playback of words were so weak that she was worth a big effort to talk about what happens to her. She was angry with her husband, was very angry, many years were angry. Received the fact that «wanted», Stop saying. Blocked yourself the opportunity to communicate. She got used to believe that aggressive emotions should be supplied in themselves. And was very surprised when I realized that in fact she saved the aggression so long in himself, which, while maintaining external calm and humility, was internally ready her husband just kill.
The most interesting thing is that the process of increasing internal aggression continues until either a person «explode» And it will begin to live differently, changing his perception of life, or goes faithful and slow expensive to death. Self-destruction works: «I am ready to die, but not omitting to the swearing and the stool». Justify the expectations of other people to the detriment of their health. This is just an example. How many people, so many options for the manifestation of this disease.
When I got pregnant, the doctor literally dragged me to the abortion, showing pages from some kind of medical book, which said that pregnancy provokes the progression of the disease. I did not listen, gave birth to two children in a row, and recently I read that breastfeeding is categorically contraindicated by Miasten. Late, cute tutorial, children I focused myself. I did not know the youth and «Stupidity», that Miasten's muscles are atrophy. They are in decent. When I come to doctors, they are surprised at my state.
I do not say that you do not need to listen! It is important to hear.. Your feelings, your desires and not confuse them with generally accepted ideas about something - either. About life, about health, about relationships. I really want to push out, even shout, styled by me slogan: «Miasthenics of all countries, trust yourself, listen to yourself, feel, be a little egoists». AND… Believe in a miracle… Miracles still happen if we really want it and are ready to change, work on yourself and believe in the best.
