Children with Down syndrome. Features of social adaptation. Part 1

Content

  • What is Down syndrome?
  • As recognized by the Down's syndrome?
  • As manifested extra chromosome?
  • Parents know that the baby developmental disorder
  • Familiarity with baby
  • How to inform others
  • The conversation with the brothers and sisters of the newborn
  • How to help your child?


  • Children with Down syndrome. Features of social adaptation. Part 1


    What is Down syndrome?

    The word "syndrome" refers to a set of attributes or features.
    The name 'Down' comes from the name of the physician John Langdon Down,
    who first described the syndrome in 1866. In 1959
    French professor Lejeune showed that Down's syndrome is associated with
    genetic changes.

    The human body is made up of millions of cells, and
    each cell contains a certain number of chromosomes. Chromosomes - it
    tiny particles in cells carrying coded information accurately
    all heritable traits.

    Typically, each cell 46 is
    chromosomes, half of which the person receives from the mother and half - from
    father. A person with Down syndrome in the 21st pair of chromosomes has a third
    extra chromosome, as a result of 47.

    Down syndrome occurs in
    one of 600-1000 births. The reason that this occurs,
    It has not yet been elucidated. Children with Down syndrome are born to parents
    belonging to all social classes and ethnic groups, with the most
    different levels of education.

    The probability of the birth of the child
    increases with maternal age, particularly after age 35, but
    Most children with this disease still are born to mothers who did not
    below that age.

    Down's Syndrome can not be prevented and it can not be cured. But
    thanks to recent genetic research now about
    functioning chromosomes, especially about 21 minutes, much more is known.
    Achievements allow scientists to better understand the typical features of this
    syndrome, and in the future they may allow improved
    health care and socio-pedagogical methods of support such
    of people.


    As recognized by the Down's syndrome?


    The presence of Down syndrome is usually detected shortly after birth
    child as a doctor, nurse or parents exhibit characteristic
    features. And then be sure to chromosomal tests are carried out to
    confirm the diagnosis.

    The child corners of the eyes are slightly raised, his face looks a little
    flat, the mouth a little smaller than usual, but the tongue - a little more.
    Therefore, the baby can poke it - a habit gradually
    You can get rid of. The palms wide, with short fingers and lightly
    bent inwards little finger. The palms can be only one transverse
    fold. There is a mild muscle flaccidity (hypotension), which
    It passes when the child gets older. The length and weight of the newborn
    less than usual.

    Children with Down syndrome. Features of social adaptation. Part 1



    As manifested extra chromosome?


    The extra chromosome affects the health and development
    thinking. Some people with Down syndrome can be serious
    health disorders, others - minor.

    Some diseases occur in people with Down syndrome are more likely
    such as: congenital heart disease, some of which are serious and require
    surgery; hearing deficiencies are common, and more
    often - view, quite often there are thyroid disease, as well as
    colds.


    People with Down syndrome are usually of intellectual disability in varying degrees.

    Development of children with Down syndrome can be very different. As well as
    ordinary people, as adults, they can continue to learn, if they
    given such an opportunity.

    However, it is important to note that, as each
    an ordinary person, it is necessary for each such child or adult
    treated individually. Just as it is impossible to predict
    development of any child, there is no way to predict the development of
    baby with Down syndrome.



    Parents know that the baby developmental disorder


    All parents who have experienced this moment, said that experienced
    terrible shock and a reluctance to believe the diagnosis - as if this was the end
    Sveta. At this point, the parents are usually terribly frightened, and
    it seems that they want to escape from this situation.


    Some parents try not to face the truth, hope,
    that there was an error that chromosomal analysis was performed improperly,
    and at the same time they may be ashamed of such thoughts. This is - a natural
    reaction. It reflects the common aspiration of all people to hide from
    a situation that seems hopeless.

    Many parents fear that
    birth of a child with Down's syndrome in some way affect their
    social status, and they fall in the eyes of others - people who gave
    life of a child with impaired mental development.

    To return to its normal state, to start
    daily activities, to establish habitual communication requires more than one month.
    Perhaps grief and sense of loss will never disappear completely, and,
    However, many families are faced with this problem,
    evidence about the beneficial effects of such an experience.

    They
    I felt that life took on a new, deeper meaning, and became
    a better understanding of what's really important in life. Sometimes this
    crushing blow invigorates and unites the family. Such an attitude towards
    favorable situation all affect the child.



    Familiarity with baby


    Some parents recognized their reluctance to approach the
    newborn. However, at some point, they overcome their doubts
    and fears are beginning to consider their baby, to touch him,
    take it to the handle, take care of it; if they feel that their baby
    especially infant and much more like than unlike, other
    kids.

    Coming into contact with a child, Mom and Dad feel better than its "normal". Parents usually try to quickly get acquainted with
    the individual characteristics of the newborn.

    Each family is required different times in order to feel
    I am doing well with the child. The feeling of sadness may appear again, especially
    when some circumstances remind parents that their child with
    Down's syndrome is not able to do what they know how its conventional peers.


    Children with Down syndrome. Features of social adaptation. Part 1


    How to inform others


    Upon learning that the baby Down syndrome, parents often can not immediately
    decide whether to report about it to relatives and friends. In any case, native,
    friends and acquaintances will see that the child looks a little unusual, notice
    stiffness and the sorrow of parents.

    They talk about zavedut newborn and
    it may cause embarrassment or even make relationship
    strained. The conversation, though painful, can be an important step for
    parents returning former self-confidence and peace of mind.

    In turn, the friends and family do not always know how to
    to respond to such a joyless tidings. They are afraid to offer help,
    that it was not regarded as interference in the affairs of others or idle curiosity, waiting for some sign that their presence is desirable and
    assistance may be helpful.

    Sometimes the relationship crumble if
    parents are waiting and do not receive proof of the former location of loved ones
    to yourself. The most reasonable in this situation - to start business, usually
    following the birth of a child: normal, common courtesies
    will help parents feel better.

    During this period, grandparents may require a separate
    help. Their attention focuses on the adult children - parents
    toddler, and they painfully ponder how to protect them from stress.



    The conversation with the brothers and sisters of the newborn


    If Down syndrome is born the youngest child in the family, in front of
    parents arises another problem: what to say to their older children.
    There is a natural desire to protect them from adult grief.

    Often
    parents overestimate their children's sensitivity to the experiences of
    adults and their ability to notice anything unusual in appearance and
    neonatal development. However, experience shows that it is important to them
    to talk as soon as possible.



    How to help your child?


    Parents of children with Down syndrome, just like all mothers and
    Pope concerned about the issue: what the future of their children? What are they
    They wish for their children?


    • To be able to fully communicate with both the
      ordinary people and with the people, the possibility of which is limited. Have
      real friends among both.

      Children with Down syndrome. Features of social adaptation. Part 1

    • Be able to work among ordinary people.


    • Be
      a welcome visitor to the places frequented by other members
      society, and to participate in common activities, feeling at the same time
      comfortable and confident.

    • To live in the house, which would correspond to the request and material opportunities.

    • Be happy.



    To learn how to interact with ordinary people so
    as it should, a child with Down syndrome should attend a regular
    public school. Integration into mainstream school will give him the opportunity to
    learn to live and act in the way it is accepted in the world around him.


    Integration can be different. A student can spend the entire school
    Day in the regular school setting, while it is
    necessary assistance: special teaching aids are available, with him
    engaged additional staff, special prepared for him
    (Individual) curriculum.


    Or, even though the child's primary learning environment
    is a common class of the time the student can spend in a special
    class. The number of hours spent in a special class,
    It is set in accordance with his individual needs and
    He agreed with the parents and school personnel in the process of
    drawing up an individual training program.


    Many educators and parents believe that children with disabilities
    capabilities, regardless of the type of violation, should visit those schools,
    who walk in the children living in the neighborhood. If the child's carry in
    some other school, he immediately becomes in the public eye is not
    like everyone else. Also in this case it is much more difficult to establish
    good relationships with their peers and find friends among them.

    The right of children with Down syndrome, as well as other children with disabilities
    opportunities to maximize social adaptation, that is,
    Seen ordinary kindergarten and schools are fixed in Russian
    legislatively1.


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    1According to the Convention on the Rights of
    Child (approved gene. Assembly on 20 November 1989.)
    ratified by the Decree of the USSR Supreme Soviet on June 13, 1990 №1559-1, «disabled children with intellectual disabilities, including children with
    Down syndrome, children with multiple mental and physical disorders,
    have the right to receive an education and rehabilitation in terms of social integration in the most general or special system (corrective) education. "


    In accordance with para. 1, Art. 16 of the Law "On Education" bodies
    Education Management provide a "welcome all the people who
    reside in the territory and have the right to education
    the appropriate level. " At the same time, parents have the right to "choose the form of education, educational institutions" for their children,
    article 1 paragraph. 52 of the RF Law "On Education".

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