Down syndrome - severe incurable chromosomal disease. How does the disease manifest themselves how to inform relatives that the baby has a malfunction of development and how to help the kid himself? Legal norms of children with Down syndrome.
Content
What is Down Syndrome?
Word «syndrome» Indicates many signs or features.
The human body consists of millions of cells, and
Usually in each cell is 46
Down syndrome is observed
The probability of birth of such a child
Down syndrome can not be prevented and it is impossible to cure. But
Name «Down» Comes from the name of the doctor John Langdon Down,
which first described this syndrome in 1866. In 1959
French Professor Lezhen proved that Down syndrome is associated with
Genetic changes.
Each cell contains a certain number of chromosomes. Chromosome - that's
Tiny particles in cells carrying precisely encoded information
about all inherited signs.
chromosome, half of which a person gets from mother, and half - from
Father. A man with Down syndrome in the 21st pair of chromosome has a third
Additional chromosome, as a result of 47.
one of 600-1000 newborns. The reason for which it happens,
still not clarified. Children with Down syndrome are born from parents,
belonging to all social strata and ethnic groups, with the most
Different level of education.
increases with the age of mother, especially after 35 years, however
Most children with this pathology are still born in mothers, not
reached this age.
Thanks to the latest genetic studies now
Functioning by chromosomes, especially about the 21st, well known more.
Achievements of scientists make it possible to better understand the typical features of this
syndrome, and in the future they may allow you to improve
Medical assistance and socio-pedagogical methods of supporting such
of people.
As recognized by Down syndrome?
The presence of Down syndrome is usually detected shortly after birth
child, since the doctor, nurse or parents detect characteristic
Damn. And then chromosomal tests are required to
Confirm the diagnosis.
Kid's corner eyes slightly raised, the face looks somewhat
flat, oral cavity is slightly smaller than usual, but a slightly more.
Therefore, the baby can handle it - the habit of which gradually
You can get rid of. Palm wide, short fingers and slightly
curved inside the little finger. On the palm can be only one transverse
fold. Light muscle lethargy is observed (hypotension), which
passes when the child gets older. Length and weight of the newborn
less than usual.
How does an excess chromosome manifest?
Extra chromosome affects health and development
Thinking. Some people with Down syndrome can be serious
Other violations from others - minor.
Some diseases occur in people with Down syndrome more often,
For example: congenital heart defects, some of which are serious and requires
surgical intervention; often there are shortcomings of hearing and still
more often - vision, often occasion of thyroid disease, as well as
colds.
In people with Down syndrome, there are usually disorders of intelligence in varying degrees.
Development of children with Down syndrome is very different. As well as
ordinary people, becoming adults, they can continue to learn if they
This opportunity is given.
However, it is important to note that, as for everyone
An ordinary person, to each such child or adult it is necessary
Treat individually. Just like predicted in advance
The development of any infant is not possible to predict in advance
Baby with Down Syndrome.
Parents learn that the baby has a violation of development
All parents who survived this moment said that they experienced
terrible shock and reluctance to believe in the diagnosis - as if it came to the end
Sveta. At this point, parents are usually scared, and
It seems that they want to escape from this situation.
Some parents try not to watch the truth in the eyes, hope,
that an error occurred that chromosomal analysis was carried out incorrectly,
And at the same time, they may be ashamed of such thoughts. This is natural
reaction. It reflects the striving for all people to hide from
Situations that seem hopeless.
Many parents are afraid that
The birth of a child with Down syndrome in some way will affect them
social position, and they will fall in the eyes of others - as people who gave
Life to a child with a violation of mental development.
To return to your usual state, start
everyday affairs, establish usual ties, required not one month.
Perhaps sadness and feeling of loss will never disappear finally, and,
However, many families faced with this problem,
testify about the beneficial effects of such experience.
They are
felt that life acquired a new, deeper meaning, and became
it is better to understand that in life is really important. Sometimes such
crushing hit gives strength and splits the family. Such attitude K
Situations are more likely to affect the child.
Acquaintance with baby
Some parents are recognized in their unwillingness to get closer to
Newborn. However, at some point they overcome their doubts
and fears, begin to consider their baby, touch him,
take it on the handles, take care of him; Then they feel that their kid
First of all, the baby and much more like it does not look like, on others
kids.
Entering into contact with the child, mom and dad feel better «normality». Parents usually seek to seek to meet
Individual features of the newborn.
Each family requires different time in order to feel
Himself with the child is good. The feeling of sadness can appear again, especially
when some circumstances remind parents that their child with
Down syndrome does not know how to do what his ordinary peers can.
How to inform others
Having learned that the kid's Down syndrome, parents often can't immediately
decide whether to report this relative and familiar. In any case, relatives,
Friends, acquaintances will see that the child looks a little unusual, notice
Station and sorrow of parents.
They will lead a conversation about the newborn, and
it can cause awkwardness or even make relationships
stretched. Conversation, let it be painful, can become an important step for
Returns to parents of the former self-confidence and spiritual equilibrium.
In turn, friends and relatives also do not always know how
react to such a sad news. They are afraid to offer help,
so that it was not regarded as interference in other people's affairs or idiot curiosity, waiting for some sign that their presence is desirable, and
help can be useful.
It happens that the relationship rushes if
parents are waiting and do not get evidence of the former location of loved ones
to yourself. The most reasonable thing in such a situation is to start affairs, usually
next to the birth of a child: normal, generally accepted signs
help parents better feel.
During this period, grandparents may need separate
help. Their attention focuses on adult children - parents
kid, and they painfully reflect on how to protect them from stress.
Conversation with brothers and sisters of a newborn
If a junior child in the family is born with Down syndrome,
Parents get up to another difficulty: what to say to your senior children.
There is a natural desire to protect them from aging adults.
Often
Parents overestimate the sensitivity of their children to experiences
adults and their ability to notice anything unusual in appearance and
Development of the newborn. However, experience shows that it is important with them
talk as soon as possible.
How to help baby?
Parents of children with Down syndrome, just like all moms and
Pope are concerned about: what future is their children? What are they
Wish for their children?
-
Be able to fully communicate like
ordinary people and with people whose capabilities are limited. Have
true friends among those and others. -
Be able to work among ordinary people.
-
To be
welcome visitor to those places where other members come
societies and participate in common events, feeling at the same time
Comfortable and confident. -
Live in the house that would meet wishes and material opportunities.
-
Be happy.
In order to learn how to interact with ordinary people,
As it should, a child with Down syndrome should visit the usual
State school. Integration into a regular school will give him the opportunity
learn to live and act as it is accepted in his surrounding world.
Integration can be different. The student can carry out all the educational
day in the usual school atmosphere, while it turns out
Required assistance: Special teaching aids are provided, with him
Additional staff is engaged, it's a special
(individual) curriculum.
Or, although the main educational environment of the child
there will be a regular class, part of the time student can carry out in a special
class. In this case, the number of hours spent in a special class,
Installed in accordance with its individual needs and
agreed with parents and school personnel in the process
drawing up an individual curriculum.
Many teachers and parents are convinced that children with limited
opportunities, regardless of the type of violation, you should visit those schools,
in which children living next door. If a child is in
some other school, he immediately becomes in the eyes of the public
such as all. In addition, in this case it is much more difficult for him to establish
Good relationship with peers and find friends among them.
The right of children with Down syndrome, like other guys with limited
opportunities, maximum social adaptation, that is, on
A visit to the usual kindergarten and school, in Russia are fixed
lawone.
em>.
oneAccording to the Rights Convention
child (approved gene. UN Assembly November 20, 1989.),
Ratified Decree of the USSR Sun of June 13, 1990. №1559-1, «disabled children with deviations in mental development, including children with
Down syndrome, children with multiple psychophysical disorders,
have the right to receive education and rehabilitation in the conditions of the greatest social integration in the system of general or special (corrective) education».
In accordance with P. 1 Art. 16 of the Law «About education» Organs
Education management provides «admission of all citizens who
live in this territory and have the right to receive education
corresponding level». At the same time, parents have the right «choose learning forms, educational institutions» For their children,
provided for P.1st. 52 of the Law of the Russian Federation «About education».
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